SHARE
I have been photographing this family since Evan (big brother) was just a newborn baby. So many changes for this family! When Elizabeth and Grayson were born I photographed them when they were sweet babies too, but under much different circumstances. Sweet Grayson had a heart attack at just a few months old and I photographed him and Elizabeth at Children’s Hospital. Of course all of this led to a lot of testing and it was eventually discovered that these sweet babies both have Hurler’s Syndrome.
Part of the treatment for this condition was a bone marrow transplant for the babies. (Grayson is an overachiever so he got two!) I can’t imagine how hard that year was because the transplants happened in the midwest and some of the family stayed here and some of the family went there. They have made it through all of the crazy with such humor and grace. Katie has been documenting the twins’ progress on a blog. They are truly an inspiration!
It was a pleasure to see these guys doing so well. We had a lovely sunny spring day (a rarity this spring) and three happy kids. I’m so glad I got a chance to photograph this family under much happier circumstances. (This family is also one of my Soulumination families and I photographed them just before they left for the transplants.) There was lots of giggling and twirling and running!
Here are my favorites…